Mila is a kid that was born with a disease called Batten Disease for which there was no real treatment when she was diagnosed. Her family (and her Mom) however are just as amazing as she is, and they did not let the lack of treatments stop them trying to do something to help her. They launched a GoFundMe campaign and found amazing doctors and partners to develop a new treatment, which she is now receiving. The treatment is tailored to her disease, but hopefully the information gained could provide a path to treat others. Mila is still being treated so it's too early to know if it will bring her and her family the relief they need, but there area lot of people hoping it does.
There is a really interesting presentation and update on Mila here:
https://www.youtube.com/watch?v=Tqgu-ka3Z3A&feature=youtu.be
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